Joy Mason runs the charity Mast Cell Action. Joy has MCAS and also has 2 children with MCAS so really understands the complexities of living with mast cell disease and the difficulties that many people in the MCAS community face. Joy is passionate about making life better for people living with MCAS. Mast cell activation syndrome is a condition which forms part of a spectrum of mast cell disorders. It causes a person to have repeated severe allergy symptoms affecting several body systems. People who have MCAS often have at least one additional condition. Common comorbidities include Long Covid, ME/CFS, connective tissue disorders such as Ehlers Danlos Syndrome (EDS) and Marfans, dysautonomia, such as postural orthostatic tachycardia syndrome (POTS), and type 2 diabetes.
Mast Cell Action was founded in 2016 to support people affected by MCAS. Their work supports and unites the MCAS community. They work with the medical community to ensure that people with MCAS receive the best possible care. They also promote research into conditions related to mast cell activation, lobby for universal awareness, diagnosis and treatment of MCAS and educate the wider community – reducing stigma and improving lives for those living with MCAS.
Zoom details (for all of our meetings mentioned in this issue) are Meeting ID: 777 116 5459 Passcode: smeg and links will be emailed out to members and put on our website and Facebook Group. It will be at 11am and people are welcome to join in for informal chatting and sharing from 10.30am.
